Mit dem Tourette-Syndrom durch Polen in ¦rem bei Julka Wojtkowiak

Mit dem Tourette-Syndrom durch Polen in ¦rem bei Julka WojtkowiakDie Volontärin aus der Region Großpolen Ewa Komorowska traf sich am 18. Dezember 2015  mit Julka Wojtkowiak (8 Jahre alt), die vom Tourette-Syndrom betroffen ist. Am Treffen beteiligte sich auch die Jorunalistin aus der örtlichen Tageszeitung Tygodnik ¦remski Katarzyna Baksalary, die gerade dabei ist, einen ausführlichen Artikel über Tourette-Syndrom und den Kampf mit der Krankheit.

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Unsere Zielsetzung

Die Tourette-Gesellschaft Polen e.V. unterstützt die Tourette-Syndrom Betroffenen und ihre Angehörigen, indem sie eine Plattform für gegenseiteige Kontakte schafft und das Wissen über die Natur der Erkrankung und ihre Behandlungsmethoden zusammenträgt und an die Öffentlichkeit bringt. 

Für die Umsetzung dieser Ziele betreibt die Gesellschaft Beratungs-, Informations- und verlegerische Tätigkeit . Der Verein arbeitet mit Spezialisten und Institutionen aus dem Bereich der Edukation, des Gesundheitswesens und der Forschung zusammen.

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Meinungsumfrage

Gelten die Tourette-Syndrom Betroffenen als sozial ausgegrenzt?

JA - Ich bin selbst betroffen
JA - Ich bin Angehöriger
JA- Ich bin Arbeitskollege
JA - Ich vertrete die Öffentlichkeit
NEIN - Ich bin selbst betroffen
NEIN - Ich bin Angehöriger
NEIN - Ich bin Arbeitskollege
NEIN - Ich vertrete die Öffentlichkeit

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Die Tourette-Gesellschaft Polen e.V. ist als gemeinnütziger Verein anerkannt

 
 


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Tourette de Pologne - Archiv

Tourette-Syndrom

Das Tourette-Syndrom ist eine neuropsychiatrische Erkrankung, die durch das Auftreten von mindestens einem vokalen und mehreren motorischen Tics gekennzeichnet ist. Allgemein sind Tics unwillkürliche, sich wiederholende Bewegungen verschiedener Muskelgruppen, die plötzlich auftreten und als Zuckungen bzw. Lautäußerungen zum Ausdruck kommen. Einfache motorische und vokale Tics laufen eher schnell ab und wirken dadurch unbeabsichtigt, während komplexe Tics durch ihren langsameren Ablauf oft willkürlich erscheinen. 

1885 veröffentlichte  der französische Neurologe Gilles de la Tourette aus dem Pitié-Salpêtrière Hospital in Paris auf Grund von 9 Krankefällen seine Studien über die mitunter schon im frühen Kindesalter beginnende neuropsychiatrische Erkrankung. Unter seinem Namen wurde dieses Krankheitsbild in der ganzen Welt bekannt. 

 

Tourette-Gesellschaft Polen e.V.

Tourette-Gesellschaft Polen e.V.
Centrum Organizacji Pozarz±dowych SZPITALNA
ul. Szpitalna 5 m. 5
00-031 Warszawa

Tel.: (48) 22 828 91 28 DW 143

E-Mail: tourette@tourette.pl

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